Yesterday I stacked logs in the newly built log store, didn’t get rejected by any literary agents and discovered that I have finished by Christmas shopping – which definitely fits me into the domestic goddess category albeit on a temporary basis. Then I remembered that I hadn’t handed over the hula hoop that the Littlest Madam has specifically asked for on her Christmas list to the Pottermeister and I’m not sure when we’re seeing them again, so immediately fell off my perch of serenity.
Given that the goal is to ensure HWIOO doesn’t require afternoon naps I have been nominated to do some wider reading. HWIOO couldn’t use a computer for a long time and he still finds that the words do dances and shimmies all of their own devising if he spends too long looking at the screen.
Turns out there’re such things as sleeping scales. Who would have known? There’s the Chalder Fatigue Scale (CFQ) and the Epworth Sleepiness Scale (ESS). Don’t you just love all those acronyms. Basically the Chalder Fatigue Scale is the questionnaire that newly diagnosed CFS patients are asked to fill in assessing their levels of tiredness in order to work out how day-to-day life is going. Apparently the questions are benign and non threatening…you should try telling that to a man with brain fog like the fog you get when you’re actually inside a cloud. One of the questions actually is “Do you have difficulty concentrating?” There are four columns and you simply select the most appropriate from ‘Better than usual’, ‘No worse than usual’, ‘Worse than usual’ and ‘Much worse than usual’ – which is fine if you can remember what usual actually might be. The ticks are then scored from 0-3 and mathematical alchemy is applied to determine how fatigued the respondent is.
The Epworth Sleepiness Scale is also based on a questionnaire and just like the CFQ it comes in the pack of papers that voyagers along the treacle path covered, fog filled road of CFS are required to fill in – just at the point where answering daft questions is the last thing they want to do. So, where are we now…other than knowing what all that paperwork was for?
Well, HWIOO isn’t sleepy, he’s fatigued. They’re not the same thing. The afternoon nap is a way of controlling feelings of exhaustion which in turn means that HWIOO is able to get on with doing every day things. It follows that if HWIOO doesn’t have an afternoon nap he will continue to feel exhausted and won’t be able to function much beyond three thirty and if he continues not napping he’ll have a relapse – we’re definitely getting better at not reaching those points.
And that’s as far as I’ve got in my reading. The next step is to dig out the notes that HWIOO was given by his consultant and check that we’re still doing all the things we’re supposed to be doing.
Oh yes – and H is going to be holly. It’s the right time of the year after all.